Lung Cancer Spread to The Brain

My mother has lung cancer that spread to her brain. She was diagnosed in 22’. Immunotherapy and one brain surgery has got us this far but now she is starting to decline. She can not walk without assistance (has fallen almost everytime she’s tried to walk on her own) she can not keep track of her own medications, she has trouble holding her bowels, she can not drive. My sister and I take care of her as much as we can while she continues immunotherapy but recently they found another brain tumor (this makes 5 total) on her brain stem. We have just been told they’re unable to deliver anymore radiation to her brain and surgery is off the table as well. We are having trouble navigating options for home care for when my sister and I are unable to provide her care, (sorting meds and making sure she takes the right ones, walking to the bathroom, etc.) she has Medicare. Does anyone know our options or have similar experiences and what did you do? We are poor. She already lives with us. We are looking for a way to have insurance cover our needs (which are only when we can’t be there to help her). Insurance is confusing so I’m hoping someone could dumb some of this down for me. I am not the brightest.

Hospice is not an option right now due to her continuing immunotherapy for now. I think they want to see if it will improve her condition/quality of life at all.

Thanks in advance.

submitted by /u/NotCaringToday
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